Lydia was born happy and healthy. She contracted a deadly bacterial meningitis infection at only 3 months old. She spent 54 days in the PICU and lost over half of her brain matter, but ultimately was victorious against her 1-in-4 survival odds.
Madison, Wisconsin, July 7, 2025, Meet Lydia, a brave little girl who has captured the hearts of many. She is twenty-one months old with spastic quadriplegic cerebral palsy due to a near-deadly meningitis infection, 25% survival rate. Her journey is one filled with challenges, hope, and a community rallying together to support her fight for better health. Facing an uphill battle against her medical condition, Lydia’s story has become a beacon of inspiration for countless individuals.
Recently, Newsweek took notice of her plight and shared it with the world through their coverage of her GoFundMe campaign aimed at funding essential stem cell treatments. These innovative treatments harness the body’s natural ability to heal. By using stem cells, doctors can target areas where damage has occurred and promote regeneration. This is particularly crucial for conditions that currently lack effective treatment options.
The versatility of stem cells allows them to adapt into various types of tissues, providing a tailored approach to healing. It opens doors not just for symptom relief but also for long-term recovery possibilities. Advancements in research continue to shed light on new applications for stem cell therapy. The evolving landscape presents opportunities that could change lives forever—Lydia’s journey underscores this vital need for continued exploration in medical science.
Lydia’s parents recently rounded up the remainder of their excess funds in order to take Lydia to Panama for 40 million mesenchymal stem cells derived from a donor umbilical cord and administered via IV. This treatment paired with the necessary post-op therapies totaled $32,000. Ongoing treatment costs have prompted a GoFundMe Campaign to be established.
During a recent interview, Lydia’s Mom Alexa, made these comments, “I can say with confidence now that the cost was worth it, as Lydia is flourishing in her current growth phase post-cells! She’s on the cusp of supporting her own head *finally* after 1.5 years focusing on this milestone. She’s also becoming vocal!
She’s starting to make serious progress towards crawling, rolling, grabbing toys to play with, etc. Well-wishers quickly made note of her drastically improved vision, focus, and demeanor also! These changes all developed starting only 2 weeks post-transfusion. We weren’t supposed to see much in the way of differences for another month yet.”
Friends and followers on social media have expressed immense joy at seeing her smile during therapy sessions. Videos capture moments where she engages with therapists and shows remarkable progress in movement. The community remains engaged through updates on platforms like Instagram and TikTok, showcasing Lydia’s spirit. Each post reflects not just improvement but also an outpouring of love from those who support her cause.
People from all walks of life joined in, leaving messages of encouragement and love. The sense of unity grew stronger with every contribution made. This collective effort highlighted the power of compassion in times of need and showed how communities can truly come together for one another.
This is an excellent opportunity to be part of something bigger than oneself. An innocent young girl needs lifesaving help and it is expensive. All donors achieve a tremendous feeling of pride for having stepped forward and donating what they can afford.
Lydia’s GoFundMe Campaign is here.
Instagram: https://www.instagram.com/adventures.of.mommy
TikTok: https://www.tiktok.com/@adventures.of.mommy
Media Contact:
Alexa AOM
Attn: Media Relations
Madison, WI
608.630.4446
alexa.adventures.of.mommy@gmail.com
